alyssasblessings

Hello!!! It has been a while... I know, but Alyssa is now a toddler going on her terrible 2's. We have been quite busy, but just a brief up to date.  It is February, so Alyssa is now 29 months, she is signing a lot more and communicating better with words. The signing is in English and the speaking words are in Spanish.The signing words are about 12, but the spoken words are less than 7.   Our major achievement is that she has been going potty. Every morning, she wakes up and goes potty for number one. On our days off, she signs potty and she goes for number two. Sorry for too much information, but I am so proud we are getting there. She still goes to school where she gets therapy 3 times a week, but she school provides complementary therapy daily. I believe the success has been great thanks to school. Are we walking?...we are running...at least she tries. Alyssa is extremely active, she climbs on everything she can, she even learn how to climb out of the playpen, so we...

I know this is a blog about my child, but I really need to vent my feelings somewhere. I have been heart broken since I last read on Thursday about Amelia, a girl with special needs that is being denied a lung transplant due to her condition, you can read her mother's painful story here . As a mother of a child with special needs, I am angry just to think that mother could be me someday; as Nurse who cares for chronic patients, I am jealous that some patients who are still in self destructive mode can be treated; yet a little girl is being denied her right to live. I always try to be an advocate for my daughter and many of the wonderful mothers that I met through BabyCenter and the Down Syndrome Community push me to be better everyday; but sometimes I try to have my own family involved on the process and it just make me feel so alone that my own husband does not want to hear about it; I am a wife who is feeling all these awful negative feelings and can not express them to her own...