alyssasblessings

Yeap!, it has been two years that I have not written anything about Alyssa. Well, we might be busy about life, school, and so on. As usual, we have our ups and downs...(no pun intended here!). We are just living life with a six year old who does not stop. Is she active?...yes she is....lots of energy, in fact too much energy that I can take.  Anyway, where are we now...Oh yeah, the hair!. Sensitivity issues are a huge concern, specially for her. Fine hair that tangles can be the real enemy for Alyssa. Her hair was so pretty.. she had wavy long layers of fine hair that no matter what I did, it still got tangled. I had no other choice... had to chop it off because it got so tangled one day that made us both cry. Well, she is now rocking a short bob, tangle free ( I might add). She still active, going to school. Speaking a bit more. She has grown a lot. We are heading to have a 7 year old girl in September. Sadly but truly, still weak in the potty training department. I do not wan...

People say : time is a healer... maybe it is true. It has been a while since I do not post anything in Alyssa's blog which I started to write as a way of therapy for my own sake. I have been so busy.... So, where are we? ... Alyssa is four years old...going on 5 years this September coming up (Yeah!!).  Summer was fun, had to take off almost a month, mostly work the weekends to spend time with her. She still goes to therapy twice a week: we have speech and OT which are the main focus since the low tone is where lacks the most. She usually receives PT at her school in addition to her twice a week in school therapies. We are talking people....it might not be the same as a typical 4 year old, but I think it is better than nothing. Our main goal is to say two words at once, at least when she is doing her therapy.She is kind of bilingual, I try to speak to her mostly in English since that is what school teaches her, yet little words: "agua", "a comer" are so pe...

Hello!!! It has been a while... I know, but Alyssa is now a toddler going on her terrible 2's. We have been quite busy, but just a brief up to date.  It is February, so Alyssa is now 29 months, she is signing a lot more and communicating better with words. The signing is in English and the speaking words are in Spanish.The signing words are about 12, but the spoken words are less than 7.   Our major achievement is that she has been going potty. Every morning, she wakes up and goes potty for number one. On our days off, she signs potty and she goes for number two. Sorry for too much information, but I am so proud we are getting there. She still goes to school where she gets therapy 3 times a week, but she school provides complementary therapy daily. I believe the success has been great thanks to school. Are we walking?...we are running...at least she tries. Alyssa is extremely active, she climbs on everything she can, she even learn how to climb out of the playpen, so we...

I know this is a blog about my child, but I really need to vent my feelings somewhere. I have been heart broken since I last read on Thursday about Amelia, a girl with special needs that is being denied a lung transplant due to her condition, you can read her mother's painful story here . As a mother of a child with special needs, I am angry just to think that mother could be me someday; as Nurse who cares for chronic patients, I am jealous that some patients who are still in self destructive mode can be treated; yet a little girl is being denied her right to live. I always try to be an advocate for my daughter and many of the wonderful mothers that I met through BabyCenter and the Down Syndrome Community push me to be better everyday; but sometimes I try to have my own family involved on the process and it just make me feel so alone that my own husband does not want to hear about it; I am a wife who is feeling all these awful negative feelings and can not express them to her own...

Tengo mucho tiempo deseando poner las palabras precisas para decir lo que mi mama ha sido ( y gracias a Dios, continua siendo en mi vida), pero que pasa, que realmente no encuentro "esa palabra". Ella ha sido mi poder, mi suporte, mi fuerza, mi inspiracion, mi ejemplo...la lista seria interminable, y realmente no creo q tengo tanto espacio para ponerlo por escrito. Sin embargo, lo unico que puedo decir es "GRACIAS MAMI", siempre has estado ahi por nosotros, y ahora es cuando me doy cuenta que eres lo mas preciado de mi vida despues de Dios, gracias por querernos y ayudarnos, por estar siempre preocupandote, gracias por el tiempo que compartes con nosotros. Gracias por tu fortaleza y amor que nos das a Chris, Alyssa y hasta Yoshi va en la lista junto con Freddy y yo. Solo queria decirte que te amamos y te queremos muchisimo. It has been a while since I wanted to blog about my mom and I have been searching for that particular word that summarizes my feelings to her, b...

It is amazing how time goes fast, like a blink, I still remember how hard it was to know about the diagnosis and how long it has taken to accept it. Now Alyssa is six months, she is learning how to seat, she turns at her own wish and her arms are strong enough to pick up her bottle. I do not believe Down Syndrome owns her, but I do understand it is part of her. I am so proud of her.