alyssasblessings

Yeap!, it has been two years that I have not written anything about Alyssa. Well, we might be busy about life, school, and so on. As usual, we have our ups and downs...(no pun intended here!). We are just living life with a six year old who does not stop. Is she active?...yes she is....lots of energy, in fact too much energy that I can take.  Anyway, where are we now...Oh yeah, the hair!. Sensitivity issues are a huge concern, specially for her. Fine hair that tangles can be the real enemy for Alyssa. Her hair was so pretty.. she had wavy long layers of fine hair that no matter what I did, it still got tangled. I had no other choice... had to chop it off because it got so tangled one day that made us both cry. Well, she is now rocking a short bob, tangle free ( I might add). She still active, going to school. Speaking a bit more. She has grown a lot. We are heading to have a 7 year old girl in September. Sadly but truly, still weak in the potty training department. I do not wan...

I know this is a blog about my child, but I really need to vent my feelings somewhere. I have been heart broken since I last read on Thursday about Amelia, a girl with special needs that is being denied a lung transplant due to her condition, you can read her mother's painful story here . As a mother of a child with special needs, I am angry just to think that mother could be me someday; as Nurse who cares for chronic patients, I am jealous that some patients who are still in self destructive mode can be treated; yet a little girl is being denied her right to live. I always try to be an advocate for my daughter and many of the wonderful mothers that I met through BabyCenter and the Down Syndrome Community push me to be better everyday; but sometimes I try to have my own family involved on the process and it just make me feel so alone that my own husband does not want to hear about it; I am a wife who is feeling all these awful negative feelings and can not express them to her own...