As I woke up this morning, I noticed it will be Alyssa's first Valentine's day. I also noticed how much my love for her has grown. I remember when Chris was born I fell immediately in love with him, in a different way, a motherly love way. When Alyssa was born, I wish I could say it was the same. My heart was aching and full of fears from the moment of her diagnosis, but as time has gone by, my heart is full of hope and love. Today as I hold her in my arms and embrace her, I thank God for giving her to me and making me realize of his greatness.
Happy Valentine's Alyssa..Mommy will always love you!
People say : time is a healer... maybe it is true.
It has been a while since I do not post anything in Alyssa's blog which I started to write as a way of therapy for my own sake. I have been so busy.... So, where are we? ... Alyssa is four years old...going on 5 years this September coming up (Yeah!!). Summer was fun, had to take off almost a month, mostly work the weekends to spend time with her. She still goes to therapy twice a week: we have speech and OT which are the main focus since the low tone is where lacks the most. She usually receives PT at her school in addition to her twice a week in school therapies. We are talking people....it might not be the same as a typical 4 year old, but I think it is better than nothing. Our main goal is to say two words at once, at least when she is doing her therapy.She is kind of bilingual, I try to speak to her mostly in English since that is what school teaches her, yet little words: "agua", "a comer" are so perfecte…
Yeap!, it has been two years that I have not written anything about Alyssa. Well, we might be busy about life, school, and so on. As usual, we have our ups and downs...(no pun intended here!). We are just living life with a six year old who does not stop. Is she active?...yes she is....lots of energy, in fact too much energy that I can take. Anyway, where are we now...Oh yeah, the hair!. Sensitivity issues are a huge concern, specially for her. Fine hair that tangles can be the real enemy for Alyssa. Her hair was so pretty.. she had wavy long layers of fine hair that no matter what I did, it still got tangled. I had no other choice... had to chop it off because it got so tangled one day that made us both cry. Well, she is now rocking a short bob, tangle free ( I might add). She still active, going to school. Speaking a bit more. She has grown a lot. We are heading to have a 7 year old girl in September. Sadly but truly, still weak in the potty training department. I do not want to m…
Oh Boy...I have to true to this blog to anyone who reads it...there is no one thing...there are several. Down Syndrome has typical characteristic appearance, and I will point it out with my favorite model, my Alyssa:
1. Flattened nose. It is so small a kiss can cover it all. 2. Small mouth. It is so little, but give the best slobbery kisses ever.
3. Protruding tongue. It is so cute and I know it is out when she is happy or when she is really tired.
4. Upward slanting eyes. The corner of her eyes is called Epicanthal fold. They are so beautiful and clearly expressive.
5. Wider Gap on Sandal toe. It is another characteristic of Down Syndrome.Besides of being so cute to smell and make her laugh, it is great for Sandals and to grasp toys as well.
I said it many times, Down Syndrome does not define my daughter, but her characteristics make me embrace her and love her even more.