3/21/2012 Celebrating Down Syndrome World Day

It is official! Our big family has gone global. Down Syndrome is going to be celebrated around the world. There are activities in different website and bloggers around the world, and we are all united to raise "AWARENESS"  around the world. Parents of kids with Down syndrome celebrate it everyday; but 3/21 is to say to the world is that we are here and we advocate for our loved ones! We love their differences and appreciate that extra chromosome that makes them unique.

March 21 represents  the uniqueness of Down syndrome in the triplication of the 21st (trisomy) chromosome. As a parent of a baby with special needs, I only want for her respect and the opportunity that others deserved. That's why we want to spread the world, to tell others and to teach them that kids and adults with special needs are persons with feelings as well.

Alyssa is a baby now, but she will grow up and I would like her to be included in activities like her peers. I want her to get a job and be respected and appreciated. I celebrate her uniqueness everyday, she is my little girl with beautiful almond shape eyes and a smile that means the world to me.

Comments

Post a Comment

Popular posts from this blog

Christopher

Image
Today I read an article someone posted in Baby Center, it was about a teen girl and her love for her sister with down syndrome. To see a teenager so compassionate love her sister is amazing. It made me think about my son, Christopher. Chris is a 10 year old boy who likes to play his video games. He is good in school, loves to read, and loves to play with his friends, but more than anything, he is the best brother Alyssa can have. When Alyssa came into the world, we did not know she had down syndrome until it was diagnosed at her birth. As I was a wreck, I did not give Chris the news until Alyssa was home with us, 12 days after her birth. I remember explaining to Chris that Alyssa was born with Down Syndrome, he asked me what did it mean. He looked so worried, as he was when the baby was in NICU and we would go visit her. I told him she is OK, but Aly would be a little different than any other kids. I told him she would learn everything but at her own pace, and I said you might have to
Read more

First Valentines Day

Image
As I woke up this morning, I noticed it will be Alyssa's first Valentine's day. I also noticed how much my love for her has grown. I remember when Chris was born I fell immediately in love with him, in a different way, a motherly love way. When Alyssa was born, I wish I could say it was the same. My heart was aching and  full of fears from the moment of her diagnosis, but as time has gone by, my heart is full of hope and love. Today as I hold her in my arms and embrace her, I thank God for giving her to me and making me realize of his greatness. Happy Valentine's Alyssa..Mommy will always  love you!
Read more

Gracias Mami

Image
Tengo mucho tiempo deseando poner las palabras precisas para decir lo que mi mama ha sido ( y gracias a Dios, continua siendo en mi vida), pero que pasa, que realmente no encuentro "esa palabra". Ella ha sido mi poder, mi suporte, mi fuerza, mi inspiracion, mi ejemplo...la lista seria interminable, y realmente no creo q tengo tanto espacio para ponerlo por escrito. Sin embargo, lo unico que puedo decir es "GRACIAS MAMI", siempre has estado ahi por nosotros, y ahora es cuando me doy cuenta que eres lo mas preciado de mi vida despues de Dios, gracias por querernos y ayudarnos, por estar siempre preocupandote, gracias por el tiempo que compartes con nosotros. Gracias por tu fortaleza y amor que nos das a Chris, Alyssa y hasta Yoshi va en la lista junto con Freddy y yo. Solo queria decirte que te amamos y te queremos muchisimo. It has been a while since I wanted to blog about my mom and I have been searching for that particular word that summarizes my feelings to her, b
Read more