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Gracias Mami

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Tengo mucho tiempo deseando poner las palabras precisas para decir lo que mi mama ha sido ( y gracias a Dios, continua siendo en mi vida), pero que pasa, que realmente no encuentro "esa palabra". Ella ha sido mi poder, mi suporte, mi fuerza, mi inspiracion, mi ejemplo...la lista seria interminable, y realmente no creo q tengo tanto espacio para ponerlo por escrito. Sin embargo, lo unico que puedo decir es "GRACIAS MAMI", siempre has estado ahi por nosotros, y ahora es cuando me doy cuenta que eres lo mas preciado de mi vida despues de Dios, gracias por querernos y ayudarnos, por estar siempre preocupandote, gracias por el tiempo que compartes con nosotros. Gracias por tu fortaleza y amor que nos das a Chris, Alyssa y hasta Yoshi va en la lista junto con Freddy y yo. Solo queria decirte que te amamos y te queremos muchisimo. It has been a while since I wanted to blog about my mom and I have been searching for that particular word that summarizes my feelings to her, b...

Enjoying Therapy:Wordless Friday

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Six months of love

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It is amazing how time goes fast, like a blink, I still remember how hard it was to know about the diagnosis and how long it has taken to accept it. Now Alyssa is six months, she is learning how to seat, she turns at her own wish and her arms are strong enough to pick up her bottle. I do not believe Down Syndrome owns her, but I do understand it is part of her. I am so proud of her.

Dejanos Entrar ...meaning let us in

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On March 21, we celebrate Down Syndrome Day, so in honor of it, I am translating a song from Asindown. This group put a video for  the song Dejanos entrar! , Lyrics and Music by Carlos Lopez. I think we can relate and others can learn. We love our kids as they are, but others need to open their eyes and notice them more. I hope I do justice to the original song with my translation, so please forgive me if I mess up the meaning of a word. I tried to keep the translation as much close, but sometimes you can not translate something in Spanish with the same word in English.  Below the translation, you will find the lyrics of the song in Spanish, courtesy of Asidown website.  Let Us In You have been noticing my disability for some time that you disregarded my abilities and I left your bias hidden away I propose you do the same with the "witch"discrimination. Let us in! I have feelings and dreams just like you Let us in! Just as a thread...

Appreciation

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It is amazing how many of us don't appreciate the good things we have. Since Alyssa's birth, I have obtain a new taste in life. I thank God (really I do) literally for everything. Aly goes to therapy twice a week, and everytime she goes to physical therapy, she just amazes me as she tries her best without complaining. Yesterday, I tried to push a boundary: I fed her rice cereal. I know she is already five months and most of the babies start feeding at four, but I AM so scared due to her low tone she might choke. Feeding is no an issue I would have been worry with Christopher, but feeding Alyssa is another ball game. I sat her down in her bumbo seat, put a plastic bib on and feeding started: at the beginning she didn't know what to do, but then I noticed she tasted it and swallowed it! Hurray!!! I felt so relieved. We continue the feeding of rice cereal for about 5 spoons. She would keep her food in the mouth, taste and swallow it. We take lots things for granted, but I can...

First Valentines Day

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As I woke up this morning, I noticed it will be Alyssa's first Valentine's day. I also noticed how much my love for her has grown. I remember when Chris was born I fell immediately in love with him, in a different way, a motherly love way. When Alyssa was born, I wish I could say it was the same. My heart was aching and  full of fears from the moment of her diagnosis, but as time has gone by, my heart is full of hope and love. Today as I hold her in my arms and embrace her, I thank God for giving her to me and making me realize of his greatness. Happy Valentine's Alyssa..Mommy will always  love you!

Every prayer gets an answer

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 Yesterday, I was in therapy with Alyssa, and I asked the therapist how do I get her to reach. She usually sits down in the bouncer and looks around the toys over her precious head, and her arms just moved from side to side, so she suggested to put a burping towel underneath her arms. So, I did once I got home, I show her she could reach and pull the lion on the bouncer to make him play music. Guess what: she did it by herself, and then she did it again, and again. I was stunned and so proud of my little one. It is such an accomplishment. I pray everyday, and just that day I had prayed for her about it and it happened, God is super good. Not only that, I had her in her crib looking up her mobile, but I guess she caught a glimpse of a giraffe my friend Wendy gave her, and she turn all on her own. Happy, Happy, Joy, Joy.....Anyway, I add myself to the list of prayers going for Peter in which my friend  from Baby Center ( Patty ). She even has a giveaway in her blog page a Perfec...