alyssasblessings

Today I am joining a few of my baby center friends and I am going to point out what I love about Down Syndrome. I really love all the cuddling time I get. Due to low tone on our children, they snuggle better when we hug her. I love to see her sleep, then I am able to inspect every little thing: her beautiful almond eyes, her tiny little nose and her tongue sticks out a bit as she is so relax. Due to her Down Syndrome, she is so little. She just turn 12 months and she is still using baby crib shoes 3 to 6 months, her hands cannot grab her 6 oz bottle, so I hold her for her while I hold her tiny fingers. I love that I still get to put her in my baby carrier as she only weights 18.7lbs. And most of all, I enjoy every minute of it, I savor every milestone and cherish it. My number one is that age is mine baby and I love her and she loves me too

Hello my mom and dad are taking me to Downtown Disney and I am so ready. First they took me to World of Disney to look around They made me tried on some Hats from this guy called "Mickey Mouse"....first hat was a no-no Second hat was a bit too big ... Third hat was nice but Mom said it was even bigger.... Finally I just gave up ...maybe next time.

When I was pregnant with Alyssa, I had many follow ups due to my placenta previa and low amniotic fluid. I had just turned 36 years old and was offered the amniocentesis; however I refused. My quad screen test resulted in 120 in 1 for Down Syndrome, but I always said I would not abort my baby, so why do the testing. I was blindsided maybe because was scared of the unknown as I should have done it to screen for heart problems. Thanks God, Alyssa did not have any heart defect. It kinds of still scares me that my daughter might be a few of the kids left with Down Syndrome as prenatal testing has been offered more and 90% of the babies are being aborted because of a"positive"result. In the next few months, a new less invasive test will be offered to mothers to be that would detect this genetic condition within the first trimester of life. My way of thinking is this: would you abort your baby if you know he will have diabetes or cancer? Would you abort it if you knew he would ha...

I don't think I ever had a dull day ever since Alyssa was born. Right after her birth, we were referred by the hospital to Early Intervention. Our appoitment took place when Alyssa was still a peanut at two months. They evaluated her and they did refered us to be seen by Physical therapist and an ITDS. Ever since then, Alyssa has had therapy non-stop. It belongs in our lives and we have embraced it just as brushing our teeth. After 3 month, Alyssa had had it and now she has therapy from Monday through Thursday. She has seven different therapists. On Monday, she has Occupational therapy to deal with fine motor skills such as grasping a spoon, lifting blocks, or even holding a bottle. She also has her ITDS Gloria, she is wonderful, she teaches Alyssa everything from sitting to standing from blowing bubbles to saying momma. On Tuesday, she has Physical therapy to teach her how to work her big muscles And move Around, and she also has Speech for feeding issues such as swallowing and he...

I was thinking to write something meaningful to me, it is going to sound a bit selfish,so These are 21 ways Alyssa changed my life, in honor for 31 for 21, so here it goes: 1. She made me appreciate life as a precious gift. 2. Because of her I learn to be a better mom. 3. I wake up every morning with a purpose. 4. I accepted therapy is a way of life. 5. I have met a wonderul group of people. 6. I treasure every day as it is the last day of my life. 7. I learned that education never ends, we learn from others everyday. 8. I learned to live one day at a time and not to worry so much about the next day. 9. I noticed how well I am raising my son and how humble he can be to others. 10. I learned how to be a true advocate. 11. She has made me a better nurse and care more about others. 12. I also learn to respect other more than ever. 13. I learn that being different is just nothing but another way of saying you are unique. 14. Because of her, I am more open minded. 15. I am...

Finally I am on vacation, that means more time with Alyssa and Chris. Chris is 11, and he is already showing traits that he wants to be more independent, so I don't think he appreciates Mommy's time off like Alyssa. Alyssa has her own attitude already, at one year old, she already shows what she likes and what he dislikes. It amazes me everyday, she is just a good baby. She is very easy going, yet she only smiles to people she knows. I also thinks she is a bit "engreida", meaning "spoiled". If anybody reprimand her, she cries, but it is not a steep cry Instead it is just a fussy, "you bother me" cry. There goes that myth that all kids with Down Syndrome are "happy". She is strong too; she had two sharp teeth at the bottom which she only exposes them when she is laughing up at something Chris would do. Her jaw really could bite those hard teething cookies, so I have to be around to avoid any issue ( God forgive !) She is unique In every w...